Upcoming - Rare Community - Events/ Webinars/Meetings
NORD Rare Disease and Orphan Products - Breakthrough Summit
NORD Rare Disease and Orphan Products - Breakthrough Summit
NORD Rare Disease and Orphan Products - Breakthrough Summit
OCTOBER 25TH - 27TH
Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.® Together, we can advance innovation for the more than 30 million Americans – and more than 400 million people worldwide – with rare diseases!
RDLA (Rare Disease Legislative Advocacy) - Monthly Meetings
NORD Rare Disease and Orphan Products - Breakthrough Summit
NORD Rare Disease and Orphan Products - Breakthrough Summit
Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participating in the calls does not imply support for any of the policy proposals or legislation that are discussed or promoted at meetings.
The EveryLife Foundation for Rare Diseases - Events
NORD Rare Disease and Orphan Products - Breakthrough Summit
The EveryLife Foundation for Rare Diseases - Events
The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.
The Disorder Channel Film Club
NORD - National Organization for Rare Disorders - Events
The EveryLife Foundation for Rare Diseases - Events
June, TBD - 2026 - 8 p.m. ET
Inspiring Rare Disease Creative Action & Connection through Film
The aim of this film club is to expand awareness of the rare disease lived experiences, inspire creative action toward positive change and support the rare disease community through impactful documentaries.
NORD - National Organization for Rare Disorders - Events
NORD - National Organization for Rare Disorders - Events
NORD - National Organization for Rare Disorders - Events
The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy.
Global Genes - Events
NORD - National Organization for Rare Disorders - Events
NORD - National Organization for Rare Disorders - Events
Browse and find upcoming Global Genes in-person
or virtual RARE disease events by date and location hosted around the world.