MARYLAND PASSES LEGISLATION ESTABLISHING A RARE DISEASE ADVISORY COUNCIL
MARYLANDRARE - HISTORY
On May 12, 2022, Gov. Larry Hogan signed RUSP alignment bills, HB 109 (Shetty) and SB 242 (Hershey)
Championed by EveryLife Foundation, Maryland is now the tenth state to pass such historic legislation. However, it would not have been possible without the support and dedication of our own rare advocates such as Jennifer Payne and Claudia Fennel and others, who provided riveting testimony during the hearings. Thank you everyone for your advocacy and support. To learn about this ground breaking moment, click the following link: