Welcome to Maryland RARE
Bringing advocacy into action to effect change & improve the quality of life for the Rare Disease Community in Maryland.
Maryland RARE
Our Community
600,000 Marylanders are affected by Rare Diseases.
- Half are children
- Estimated population of Maryland is over 6,000,000.
- 1 - 10 people are affected by Rare Disease.
Maryland RARE - a rare disease patient advocacy organization that works toward:
- Connecting the rare disease community of Maryland.
- Increasing rare disease awareness.
- Supporting the rare disease community through education and connection to needed resources.
- Advocating for policies which improve the rare disease lived experience through medical research and access to treatments.
Our Mission
We endeavor to be a diverse coalition of rare disease community stakeholders working to foster community, build connections, improve access to care all to improve the lived Rare Disease Experience in Maryland
Welcome
Maryland RARE -
Brought together by lived experiences and community connections, we are coalition of patients, families and caregivers, community members and all of those who are working to bridge the gap regarding understanding, information, and access to resources. Our focus is on actions which build community, empower individuals and families to navigate and work towards systemic change at the local, state, and federal levels..
Contact Us
Maryland RARE
Our Partners in RARE
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