Upcoming - Rare Community - Events/ Webinars/Meetings

March 18, 2026 - 8 p.m. ET

Inspiring Rare Disease Creative Action & Connection through Film

The aim of this film club is to expand awareness of the rare disease lived experiences, inspire creative action toward positive change and support the rare disease community through impactful documentaries. 

Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participating in the calls does not imply support for any of the policy proposals or legislation that are discussed or promoted at meetings.