Upcoming - Rare Community - Events/ Webinars/Meetings
FDA - Rare Disease Day - Virtual
February 23, 2026 - Monday, 9:00 a.m - 4 p.m. ET
Moving Forward. Looking Ahead. An Event for Patients.
The goal of this year’s Rare Disease Day is to explore ways to engage and collaborate with patients and their communities to support and accelerate the development of medical products for rare diseases.
RDLA - Rare Disease Week - On Capitol Hill
February 24 - 26, 2026 (Registration closes Feb 6th)
Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. The connections you make during the week will impact rare disease patients for generations to come.
#RAREDC2026
Rare Disease Legislative Advocates (RDLA)
Rare Disease Day at NIH - In Person & Virtual
February 27, 2026 - Friday - 9:00 a.m. - 5 p.m. EST
Each year, we support this event to raise awareness about rare diseases, the people they affect, and partnerships that promote research and advance knowledge of new treatments.
RDLA (Rare Disease Legislative Advocacy) - Monthly Meetings
Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participating in the calls does not imply support for any of the policy proposals or legislation that are discussed or promoted at meetings.