Rare Disease Advisory Council - RDAC

Senate Bill - SB0188 - Status - Click Here

Link to Bill:  Public Health - Rare Disease Advisory Council

Synopsis: Establishing the Rare Disease Advisory Council to study and make recommendations on matters relating to individuals with rare diseases in the State; requiring the Council to convene public hearings, make inquiries, and solicit comments from the public on the needs of rare disease patients, caregivers, and health care providers; requiring the Council to report to the Governor and General Assembly by December 1 each year beginning in 2024 and provide recommendations on ways to address the needs of persons with rare diseases in the State; etc.

Sponsored by:  Senators Lam, Rosapepe, Salling, Muse, Carozza, Kramer, and Benson

Fiscal and Policy Note

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House Bill - HB0302 - Status - Click Here

Link to Bill - Public Health - Rare Disease Advisory Council

Sponsored by: Delegate Shetty

Fiscal and Policy Note